It’s Thanksgiving. Instead of running from Mankato to east of the cities, back to the center of it all, we sat at home getting ready to head to just one dinner hosted by my aunt and attended by the extended family on my mom’s side. I brought a pie, which was rather last minute. I was going to bring a cheesecake, but then I sat here and worked and the time squirreled itself away until a pie was the only option. I’ll tell you all about the apple and cranberry cardamom crisp concoction soon.
It’s nice to be here, as I told you yesterday. A here that is full of family and friends and void of scrubs and stethoscopes, well, if you excuse my mom and my dad’s sister (RN and MD respectively). If you follow me on Twitter or Facebook, you may have seen the updates about Kjell, our trip to the ER via ambulance, admittance to the PICU and discharge. To all of you, I say thank you. Your kind thoughts and messages and actions were so touching and meaningful as we made our way through this time with our family. We are humbled by the outpouring of love and kindness.
I wanted to give you a brief update on where we are in our journey towards health and healing. Kjell has episodes where he gets dizzy, loses his balance and his vision in both eyes, becomes less and less responsive and eventually becomes unconscious after some seizure-like activity. This time that was also accompanied by his body temperature and respirations dropping suddenly and not responding to stimuli in the emergency room, which led to him being sedated and intubated. CT scans, lumbar punctures, EEGs and x-rays were all part of the drill, one we’d seen before just this past summer, and he will soon also have an MRI and an MRA to look for brain stem and neurological issues.
We’re far from knowing what it could possibly be, and with some doctors feeling differently than others and our pediatrician watching out for him, we’re praying that the radiologists, neurologists and specialists that will be reading the scans will find the problems that are causing these things to happen so they can develop a plan to either prevent or treat before the episodes become as scary as we’ve seen them get.
We have a long road ahead of us, and so today, Thanksgiving Day, thank you for being there, for caring in whatever way you might. We hope your Thanksgiving was full of warm hugs, bountiful food and as much love as we have felt in the past 5 days. We are truly grateful for all of you.
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[…] Thankful on Thanksgiving Turkey/Vegetarian Indian Curry […]
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[…] when they said it was Kjell’s arm looked mangled. Mangled arms can be put back together. Bizarre neurological episodes are more frightening. Besides, I happen to enjoy sitting in my swimsuit and watching my kids jump […]
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[…] live, the neighbors are second to none. My neighbors have served as babysitters when I have had to rush to the emergency room, and they’ve let us know when our car door is left swinging open after a trip to the store […]
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[…] a year ago now (9 months is close to a year, no?) Kjell was in the hospital. I sat next to him. It meant time away from my family, time away from work, time away from my house […]
Thank you for being brave enough to share this with us, Shaina. Your family has been in our thoughts and prayers this week. We’re here for you, just ask if you need anything.
Lots of love. And Happy Thanksgiving. SO glad you’re home.
I’m so glad you’re all home! You’ve been in my thoughts! SCARY stuff for such a sweet boy.
Beautiful. We are thankful with you and will keep all of you in our hearts as you all maneuver through these trying times. I truly hope that you get some answers very soon 🙂
I pray this day for you and your family. May the doctors come to a conclusion on the diagnosis and the healing begin. May you and your family and precious son be surrounded by God’s cloak of comfort.
Your family has been in my thoughts this Thanksgiving. Hugs to you & hope that the doctors will figure it all out for your precious little boy.
Ever since this happened, you are in my thoughts all the time. Episodes like this put life into perspective…I am grateful for your friendship and continue to send well wishes your way. xoxoxo
Thanks for sharing, I’m glad you were able to celebrate at home. Your little one looks like such a sweetheart.
Praying for you and your family! So glad you were able to celebrate at home…..If you live in the NYC tri-state area, there are great doctors at Babies & Children’s Hospital @ Columbia Presbyterian & and Philadelphia’s CHOP (children’s hospital of Philadelphia)
We love you and are sending prayers every day!
I’ll put your son and your family on my prayers. God is powerful, trust in Him. I’m very happy that you had a nice day with your family.
Will keep u in our prayers.I dont know if this will help but you can read Loise Hay’s book You can heal your body.
My prayers are with you and your family. Thanks for keeping us posted.
you’ve been on my mind a lot lately. and the whole family … even though i KNOW none of them … i’ve been thinking of you all.
please let me know if i can help.
Oh my GOSH!!!! I had NO idea you had been going through this since Thanksgiving. What an adorable little boy. Definitely will be praying for his fast recovery and for the doctors to find the insight they need to tackle his health issues as soon as possible. I will pray that he will be well and healthy and fresh and new as all children deserve.
BIG HUG,
Valerie
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